Getting some help!

We left Elkhart Campground on Tuesday this week and drove to Summit Lake State Park, near our old home in Mooreland. They have installed 50 amp and have water on every site with a dump station, so when we need to be in the area, that is a good choice for us. We reserve the one pull-through right next to the bathhouse and use the campground showers.

I had my dermatology appointment and got my cortizone shot for my psoriasis. It's the only thing that works, so three shots a year is what I get without any side effects popping up. After that appointment we returned to the motorhome, ate lunch, and headed toward Indianapolis by checkout time at 2 p.m.

We arrived in Indy at the Indy KOA which is actually at Mt. Comfort Road, and I guess technically in Greenfield. We had registered for two nights. Terry was scheduled into the Advanced Heart Failure Lab on Thursday. Starting at 9 a.m. we had a different appointment/doctor/medical person every hour till 4 o'clock.

Terry has had heart failure that we watch and treat for nine years. People live with heart failure. At the very worst, however, heart failure patients may elect a transplant. The problem for us was that all the people we saw thought we were there for consultations for a heart transplant. Nooooooo....... we didn't get that memo and didn't sign up for that. Heart failure can be treated and the very first doctor we saw, a transplant specialist, said Terry wasn't sick enough to even think about a transplant. He was confused as to why Terry's cardiologist wanted him seen in the clinic. But most HF clinics treat heart failure. Perhaps he doesn't want to there. . . I don't know. But he did request a couple tests and said that perhaps the new HF drug, Entresto, would be a good fit for Terry. The second doctor we saw was a lung transplant specialist who was also mystified at our appearance in the clinic. He reiterated what the first doctor said. He ordered a test as well. Those three tests are all scheduled next week. The next guy was a dietitian and he said he was going to try and get the rest of our appointments cancelled because we did not need to see those people since we were not there for a transplant and that's what they would all talk about. But the gal who had scheduled everything declined his recommendation saying that if we ever needed this, it would already be done. Course, that may be years down the road or perhaps NEVER. A few more years and Terry will probably be past the "age" for such a procedure and he really doesn't want to consider it. He just wants to get to feeling better.

So we went to all the appointments and the next to last one was a social worker which was a total waste of time. She put Terry to sleep with her drivel and she arrived late and kept us 90 minutes, making us miss our last appointment.

The last one was the one we really wanted because it was a physical therapy assessment. We went down to the office and we were able to get rescheduled for today. So we went in this morning. The PT was super and she assessed Terry for doing some PT. He hasn't been able to breathe well enough to walk, but she wants him to walk 10 minutes 3 times a day. We've already done 2 rounds today and he's done well.

The biggest problem has been his sleeping. He cannot sleep at night. He is up and down until he just gives up and stays up, sometimes not getting more than 2-3 hours of sleep a night or none at all. Then he sleeps off/on all day. Skipping sleep during the day does not necessarily mean he sleeps at night. He may still be up all night, so I have been insisting that he sleep when he can. His heart needs rest and when he doesn't get it, he looks terrible. He has been so much on edge with this doctor stuff this summer and his overall health, that these things have obviously contributed greatly to his condition. Last night after seeing all these doctors, he went to bed at 7 p.m. He got up once and slept till 7 a.m this morning. Today has been a great day. He looks and feels great and he is acting like himself. I hope he continues to sleep now that he has some answers and is getting some help to get back on track.

So, we have decided to spend the weekend here in Indy because his tests are scheduled for Monday and Tuesday. We plan to leave here Wednesday and visit with Mom in Claypool before heading back to Elkhart Campground on Thursday.

Till next time. . .

Dale

Where have I been?

That's probably what all my regular readers are wondering. It's been a long few weeks and while some things have gone well, other things have not.

We have been here in Elkhart Campground for a month and just signed up for another. Our plan this summer is to get the last duplex cleaned out and sold. Would like to get that done this year, but it's not looking good. Next year for sure.

Shortly after we arrived, Jocelyn, Tom, Ronan, Aenea, and Pepper the Poodle got here. We knew they were coming and I was planning on getting everything ready over at the house. But we walked in there and found mouse droppings all over the kitchen. What a mess. So I sent Terry out for more and better mouse traps and I set to cleaning and bleaching the kitchen. I spent the entire day on it and got little else done. But at the end of the day the kitchen was clean and new traps were set for those dastardly mice. I've caught three.

Jocelyn called and asked if they could come in that night and we said yes. Although I hadn't cleaned the rest of the house, I had cleaned in the fall before we left, and the house does not get dirty during the winter months. I did manage to clean the bathrooms and we were ready for them.

We enjoyed seeing them. They had been to Niagara Falls and into Canada, camping with the dog even! And in a tent! Tom had some shows with his band, including one in Toronto. Go Tom! I hope to hear them sometime. I have heard his one band, The Hollow Machine, but I have yet to hear Spider Lilies.

We were able to see the kids every day while they were here and they visited Mom a couple times. She enjoyed seeing them and the grandkids always enjoy their great-grandma. She is the only one they have left. I managed to take Ronan for a ride in the Miata. He loves it and always wants me to take him out.

We really enjoyed their visit. We don't get to see them often and it really helps us get our kids/grandkids fix when they visit us. We try to see them twice a year and we look forward to that.

We managed to go to Terry's 50th high school reunion. Wow! They had a really good turnout and we got to see quite a few people we hadn't seen for years. Well, that Terry hadn't seen in years. A few people I knew or had met at previous reunions. We attended a meet and greet on Friday night at a bar in downtown Elkhart. The food was good and we enjoyed seeing some of his classmates there. Then Saturday night was at the country club with a dinner buffet and some games. Our table won at trivia. We earned play money for that and then we bid on door prizes people had donated. We "bought" two thermos bottles that are really nice. And since we were using our "play money" they really didn't cost us anything. It was a great time and we enjoyed ourselves.

We enjoyed an evening of cards with our friends, Luanne and Jim. We girls won! The next night we had a campfire here in the park with other friends. They are from the Elkhart area, but live in Arizona in the winter and return here in the summer to visit their kids.

Terry's been really sluggish for some time and so we paid a visit to his doctor in Indianapolis a few weeks ago. They did a few tests and changed some meds which seem to have helped. But we are going back next week for some more testing. He's had heart trouble for 20 years and it may be time to change some more of his meds. There are a lot of new meds for various heart problems and we are hoping we find something that works better.

The last few days we have had some really heavy rains. That's okay, because we were needing rain desperately. I hope it was in time to help the crops. We had a couple inches yesterday and it rained more today and supposed to tomorrow as well.

Till next time. . .

Dale